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Can you suggest a group for adults with Spina Bifida?

I am 33 yrs. old and I have Spina Bifida. I have been looking for a group to chat with for a few weeks now. I am really new to the net so I am not very good at it. One thing that I am trying to find out is how old does a person with Spina Bifida live. I would also like to talk with parents of these special children and lend any advice that I can to help them deal with this scary birth defect. Please reply if you are interested.

I have a spina bifida club at Yahoo called Spina Bifida Central, it offers a chat room, where we have scheduled chats on Monday Wednesdays and Fridays. Friday nights seem to be our most popular chat session, it begins at 8:30 pm, Eastern Standard Time. We also have message boards where people can post questions, announcements, etc. We have 182 members all who are affected by spina bifida in one way or another. The adress is . There is also a links area that has about 40 different web sites on spina bifida. In order to use all aspects of the club you must join which is very easy to do. There is so cost for this club and if you join and dont like it you can unjoin at anytime. Come check out our chat session tonight at 8:30 pm. If you go there and there is no one there hang around for a few minutes, some one will be sure to show up, we have as many as 25 members logging in for our friday night chats, they are alot of fun and reaal informative. Email me anytime if you want to talk at I also have icq and my # is 3264529.

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