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My unborn baby boy has spina bifida and hydrosephalu. sCan you share information or stories about these diseases?

Question:
I have just been informed that my unborn baby boy has spina bifida and hydrosephalus. My wife Lisa and I are looking for any information or stories that could help us understand what we are going to be going through. Any response would be greatly appreciated.


Answer:
my daughter is 7 years old and was born with spina bifida. I was 30 weeks on when we found out. I understand how overwhelming it is, they tell you all sorts of information and sometimes it just seems too much at one time. My daughter is in a wheelchair and she is very independent getting around and doing a lot of things, she sure can speed in her chair. If your wife, Lisa, would like to talk or ask any questions at all please tell her to email me anytime.

The important thing is take it one day at a time and enjoy your wee boy when he arrives, all of the kids with spina bifida have various levels and achieve different things at different times.



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